Dr Pauline McCormack
| From embodiment to evidence: The harmful intersection of poor regulation of medical implants and obstructed narratives in embodied experiences of failed metal-on-metal hips | 2024 |
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Dr Pauline McCormack
| Correction: Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis (Genetics in Medicine, (2019), 10.1038/s41436-019-0579-x) | 2019 |
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Dr Nina Hallowell Dr Pauline McCormack
| Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis | 2019 |
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Emeritus Professor Simon Woods Dr Pauline McCormack Professor Hanns Lochmuller Professor Volker Straub
| Improving the informed consent process in international collaborative rare disease research: Effective consent for effective research | 2016 |
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Dr Pauline McCormack Emeritus Professor Simon Woods
| New recommendation on biological materials could hamper muscular dystrophy research | 2016 |
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Dr Pauline McCormack
| Rare Disease, Big Data: the views of rare disease patients on systems for sharing data and biospecimens | 2016 |
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Dr Pauline McCormack Professor Hanns Lochmuller
| 'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research | 2016 |
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Dr Pauline McCormack Emeritus Professor Simon Woods
| Consent, collaboration and cures:the views of rare disease patients on systems for sharing data and biospecimens | 2015 |
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Dr Pauline McCormack Emeritus Professor Simon Woods Florian Schaefer Professor Hanns Lochmuller Professor Mats Hansson et al. | International Charter of principles for sharing bio-specimens and data | 2015 |
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Dr Matthias Wienroth Dr Pauline McCormack Professor Tom Joyce
| Precaution, governance and the failure of medical implants: the ASR(TM) hip in the UK | 2014 |
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Dr Pauline McCormack
| Setting up strategies: patient inclusion in biobank and genomics research in Europe | 2014 |
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Emeritus Professor Simon Woods Dr Pauline McCormack
| Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research | 2014 |
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Dr Pauline McCormack Dr Matthias Wienroth Clare Hopkins Professor Tom Joyce
| A mile in my shoes: the experiences of ASR hip patients and their families | 2013 |
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Emeritus Professor Simon Woods Dr Pauline McCormack
| Disputing the ethics of research: the challenge from bioethics and patient activism to the interpretation of the Declaration of Helsinki in clinical trials | 2013 |
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Dr Pauline McCormack Emeritus Professor Simon Woods Emma Heslop Professor Volker Straub Emerita Professor Katherine Bushby et al. | Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational | 2013 |
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Emeritus Professor Simon Woods Dr Pauline McCormack
| Ethical issues in bio-marker research | 2011 |
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Dr Pauline McCormack Emeritus Professor Simon Woods
| Ethics at the edge of translation: the work of the TREAT-NMD Project Ethics Council | 2011 |
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Dr Pauline McCormack Emeritus Professor Simon Woods
| Patient activism and the ethics of clinical trials: a perspective from neuromuscular disorders | 2011 |
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Dr Pauline McCormack
| Planning for the future with Duchenne muscular dystrophy – identifying support structures and approaches that can help: a review of the literature | 2011 |
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Emma Heslop Dr Pauline McCormack Professor Christoph Rehmann-Sutter Emeritus Professor Simon Woods
| The risks of therapeutic misconception and individual patient (n = 1) “trials” in rare diseases such as Duchenne dystrophy | 2011 |
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Dr Pauline McCormack Emeritus Professor Simon Woods
| The therapeutic misconception, decision making and informed consent: the ethics of trial participation for neuromuscular disorders | 2011 |
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Dr Matthias Wienroth Dr Pauline McCormack Professor Tom Joyce
| When technology fails patients: nanoparticles as a result of medical device failure | 2011 |
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Professor Tom Joyce Dr Pauline McCormack
| ‘The knee bone connected to the thigh bone’: A case study of teaching anatomy to engineering students using state-of-the-art anatomical software | 2010 |
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Dr Pauline McCormack Emeritus Professor Simon Woods
| Ethical issues with the development of personalised medicines for rare, childhood, genetic disease: the case of Duchenne muscular dystrophy | 2010 |
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Dr Pauline McCormack
| Cell therapies for Duchenne muscular dystrophy: some ethical issues for personalised medicines | 2010 |
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Emeritus Professor Simon Woods Professor Jackie Leach Scully Dr Pauline McCormack Dr Ilke Turkmendag
| Response to report by Nuffield Council on Bioethics, Give and take? Human bodies in medicine and research: consultation summary. | 2010 |
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Emerita Professor Katherine Bushby Emma Heslop Dr Pauline McCormack Emeritus Professor Simon Woods
| The development of antisense oligonucleotide therapies for Duchenne muscular dystrophy: Report on a TREAT-NMD workshop hosted by the European Medicines Agency (EMA), on September 25th 2009 | 2010 |
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