Publications by Dr Pauline McCormack - ePrints

Browsing publications by Dr Pauline McCormack.

Newcastle Authors	Title	Year
Dr Pauline McCormack	From embodiment to evidence: The harmful intersection of poor regulation of medical implants and obstructed narratives in embodied experiences of failed metal-on-metal hips	2024
Dr Pauline McCormack	Correction: Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis (Genetics in Medicine, (2019), 10.1038/s41436-019-0579-x)	2019
Dr Nina Hallowell Dr Pauline McCormack	Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis	2019
Emeritus Professor Simon Woods Dr Pauline McCormack Professor Hanns Lochmuller Professor Volker Straub	Improving the informed consent process in international collaborative rare disease research: Effective consent for effective research	2016
Dr Pauline McCormack Emeritus Professor Simon Woods	New recommendation on biological materials could hamper muscular dystrophy research	2016
Dr Pauline McCormack	Rare Disease, Big Data: the views of rare disease patients on systems for sharing data and biospecimens	2016
Dr Pauline McCormack Professor Hanns Lochmuller	'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research	2016
Dr Pauline McCormack Emeritus Professor Simon Woods	Consent, collaboration and cures:the views of rare disease patients on systems for sharing data and biospecimens	2015
Dr Pauline McCormack Emeritus Professor Simon Woods Florian Schaefer Professor Hanns Lochmuller Professor Mats Hansson et al.	International Charter of principles for sharing bio-specimens and data	2015
Dr Matthias Wienroth Dr Pauline McCormack Professor Tom Joyce	Precaution, governance and the failure of medical implants: the ASR^(TM) hip in the UK	2014
Dr Pauline McCormack	Setting up strategies: patient inclusion in biobank and genomics research in Europe	2014
Emeritus Professor Simon Woods Dr Pauline McCormack	Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research	2014
Dr Pauline McCormack Dr Matthias Wienroth Clare Hopkins Professor Tom Joyce	A mile in my shoes: the experiences of ASR hip patients and their families	2013
Emeritus Professor Simon Woods Dr Pauline McCormack	Disputing the ethics of research: the challenge from bioethics and patient activism to the interpretation of the Declaration of Helsinki in clinical trials	2013
Dr Pauline McCormack Emeritus Professor Simon Woods Emma Heslop Professor Volker Straub Emerita Professor Katherine Bushby et al.	Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational	2013
Emeritus Professor Simon Woods Dr Pauline McCormack	Ethical issues in bio-marker research	2011
Dr Pauline McCormack Emeritus Professor Simon Woods	Ethics at the edge of translation: the work of the TREAT-NMD Project Ethics Council	2011
Dr Pauline McCormack Emeritus Professor Simon Woods	Patient activism and the ethics of clinical trials: a perspective from neuromuscular disorders	2011
Dr Pauline McCormack	Planning for the future with Duchenne muscular dystrophy – identifying support structures and approaches that can help: a review of the literature	2011
Emma Heslop Dr Pauline McCormack Professor Christoph Rehmann-Sutter Emeritus Professor Simon Woods	The risks of therapeutic misconception and individual patient (n = 1) “trials” in rare diseases such as Duchenne dystrophy	2011
Dr Pauline McCormack Emeritus Professor Simon Woods	The therapeutic misconception, decision making and informed consent: the ethics of trial participation for neuromuscular disorders	2011
Dr Matthias Wienroth Dr Pauline McCormack Professor Tom Joyce	When technology fails patients: nanoparticles as a result of medical device failure	2011
Professor Tom Joyce Dr Pauline McCormack	‘The knee bone connected to the thigh bone’: A case study of teaching anatomy to engineering students using state-of-the-art anatomical software	2010
Dr Pauline McCormack Emeritus Professor Simon Woods	Ethical issues with the development of personalised medicines for rare, childhood, genetic disease: the case of Duchenne muscular dystrophy	2010
Dr Pauline McCormack	Cell therapies for Duchenne muscular dystrophy: some ethical issues for personalised medicines	2010
Emeritus Professor Simon Woods Professor Jackie Leach Scully Dr Pauline McCormack Dr Ilke Turkmendag	Response to report by Nuffield Council on Bioethics, Give and take? Human bodies in medicine and research: consultation summary.	2010
Emerita Professor Katherine Bushby Emma Heslop Dr Pauline McCormack Emeritus Professor Simon Woods	The development of antisense oligonucleotide therapies for Duchenne muscular dystrophy: Report on a TREAT-NMD workshop hosted by the European Medicines Agency (EMA), on September 25th 2009	2010