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Browsing publications by Dr Pauline McCormack.

Newcastle AuthorsTitleYearFull text
Dr Pauline McCormack
From embodiment to evidence: The harmful intersection of poor regulation of medical implants and obstructed narratives in embodied experiences of failed metal-on-metal hips2024
Dr Pauline McCormack
Correction: Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis (Genetics in Medicine, (2019), 10.1038/s41436-019-0579-x)2019
Dr Nina Hallowell
Dr Pauline McCormack
Delivering genomic medicine in the UK National Health Service: a systematic review and narrative synthesis2019
Emeritus Professor Simon Woods
Dr Pauline McCormack
Professor Hanns Lochmuller
Professor Volker Straub
Improving the informed consent process in international collaborative rare disease research: Effective consent for effective research2016
Dr Pauline McCormack
Emeritus Professor Simon Woods
New recommendation on biological materials could hamper muscular dystrophy research2016
Dr Pauline McCormack
Rare Disease, Big Data: the views of rare disease patients on systems for sharing data and biospecimens2016
Dr Pauline McCormack
Professor Hanns Lochmuller
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research2016
Dr Pauline McCormack
Emeritus Professor Simon Woods
Consent, collaboration and cures:the views of rare disease patients on systems for sharing data and biospecimens2015
Dr Pauline McCormack
Emeritus Professor Simon Woods
Florian Schaefer
Professor Hanns Lochmuller
Professor Mats Hansson
et al.
International Charter of principles for sharing bio-specimens and data2015
Dr Matthias Wienroth
Dr Pauline McCormack
Professor Tom Joyce
Precaution, governance and the failure of medical implants: the ASR(TM) hip in the UK2014
Dr Pauline McCormack
Setting up strategies: patient inclusion in biobank and genomics research in Europe2014
Emeritus Professor Simon Woods
Dr Pauline McCormack
Therapeutic Misconception: Hope, Trust and Misconception in Paediatric Research2014
Dr Pauline McCormack
Dr Matthias Wienroth
Clare Hopkins
Professor Tom Joyce
A mile in my shoes: the experiences of ASR hip patients and their families2013
Emeritus Professor Simon Woods
Dr Pauline McCormack
Disputing the ethics of research: the challenge from bioethics and patient activism to the interpretation of the Declaration of Helsinki in clinical trials2013
Dr Pauline McCormack
Emeritus Professor Simon Woods
Emma Heslop
Professor Volker Straub
Emerita Professor Katherine Bushby
et al.
Guidance in social and ethical issues related to clinical, diagnostic care and novel therapies for hereditary neuromuscular rare diseases: "translating" the translational2013
Emeritus Professor Simon Woods
Dr Pauline McCormack
Ethical issues in bio-marker research2011
Dr Pauline McCormack
Emeritus Professor Simon Woods
Ethics at the edge of translation: the work of the TREAT-NMD Project Ethics Council2011
Dr Pauline McCormack
Emeritus Professor Simon Woods
Patient activism and the ethics of clinical trials: a perspective from neuromuscular disorders2011
Dr Pauline McCormack
Planning for the future with Duchenne muscular dystrophy – identifying support structures and approaches that can help: a review of the literature2011
Emma Heslop
Dr Pauline McCormack
Professor Christoph Rehmann-Sutter
Emeritus Professor Simon Woods
The risks of therapeutic misconception and individual patient (n = 1) “trials” in rare diseases such as Duchenne dystrophy2011
Dr Pauline McCormack
Emeritus Professor Simon Woods
The therapeutic misconception, decision making and informed consent: the ethics of trial participation for neuromuscular disorders2011
Dr Matthias Wienroth
Dr Pauline McCormack
Professor Tom Joyce
When technology fails patients: nanoparticles as a result of medical device failure2011
Professor Tom Joyce
Dr Pauline McCormack
‘The knee bone connected to the thigh bone’: A case study of teaching anatomy to engineering students using state-of-the-art anatomical software2010
Dr Pauline McCormack
Emeritus Professor Simon Woods
Ethical issues with the development of personalised medicines for rare, childhood, genetic disease: the case of Duchenne muscular dystrophy2010
Dr Pauline McCormack
Cell therapies for Duchenne muscular dystrophy: some ethical issues for personalised medicines2010
Emeritus Professor Simon Woods
Professor Jackie Leach Scully
Dr Pauline McCormack
Dr Ilke Turkmendag
Response to report by Nuffield Council on Bioethics, Give and take? Human bodies in medicine and research: consultation summary.2010
Emerita Professor Katherine Bushby
Emma Heslop
Dr Pauline McCormack
Emeritus Professor Simon Woods
The development of antisense oligonucleotide therapies for Duchenne muscular dystrophy: Report on a TREAT-NMD workshop hosted by the European Medicines Agency (EMA), on September 25th 20092010