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Rare Disease, Big Data: the views of rare disease patients on systems for sharing data and biospecimens

Lookup NU author(s): Dr Pauline McCormack

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This is the final published version of a conference proceedings (inc. abstract) that has been published in its final definitive form by EURORDIS, 2016.

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Publication metadata

Author(s): McCormack P

Publication type: Conference Proceedings (inc. Abstract)

Publication status: Published

Conference Name: European Conference on Rare Diseases and Orphan Products (ECRD 2016)

Year of Conference: 2016

Online publication date: 25/05/2016

Acceptance date: 20/04/2016

Date deposited: 28/06/2016

Publisher: EURORDIS

URL: http://www.rare-diseases.eu/wp-content/uploads/2013/09/116.-Rare-Disease-Big-Data-the-Views-of-Rare-Disease-Patients-on-Systems-for-Sharing-Data-and-Biospecimens.pdf

Notes: Poster: P116 Also available at: https://figshare.com/articles/Rare_Disease_Big_Data/3393619

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