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Lookup NU author(s): Avril PalmeriORCiD, Dr Anando SenORCiD, Victoria HedleyORCiD, Becca LearyORCiD, Professor Volker StraubORCiD
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).
The primary and secondary use of data in healthcare, policy making, research, and innovation depends on data sharing. Data sharing benefits from data standards that describe how data is structured so that multiple users can access and analyse the data. Data standards play a pivotal role in facilitating the re-use of data in healthcare, policy making, research, and innovation. There are many data standards, each targeting a particular need (routine healthcare, observational research, interventional research, etc.). To prevent need-specific data silos, data standards must be mappable between each other to allow data from multiple formats to be interpreted accurately, that is data standards need to be interoperable. Other benefits of data standards include the ability of information technology to intake and manipulate information directly from the source data (machine readability) and the capability to make information Findable, Accessible, Interoperable and Reusable (FAIR).
Author(s): Turner M, Kalra D, Cornet R, Palmeri A, Sen A, Owen J, Pansieri C, Lee J, Hedley V, Nally S, Bonifazi F, Leary R, Straub V
Publication type: Editorial
Publication status: Published
Journal: Archives of Disease in Childhood
Year: 2025
Pages: epub ahead of print
Online publication date: 23/01/2025
Acceptance date: 08/01/2025
ISSN (print): 0003-9888
ISSN (electronic): 1468-2044
Publisher: BMJ Group
URL: https://doi.org/10.1136/archdischild-2024-327931
DOI: 10.1136/archdischild-2024-327931
