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Lookup NU author(s): Dr Marie Poole, Alex Hagan, Manjot Brar, Dr Louise Robinson
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).
© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.Objectives To evaluate the feasibility and acceptability of a primary care-based intervention for improving post-diagnostic dementia care and support (PriDem), and implementation study procedures. Design A non-randomised, mixed methods, feasibility study. Setting Seven general practices from four primary care networks (PCNs) in the Northeast and Southeast of England. Participants We aimed to recruit 80 people with dementia (PWD) and 66 carers Intervention Clinical Dementia Leads delivered a 12-month intervention in participating PCNs, to develop care systems, build staff capacity and capability, and deliver tailored care and support to PWD and carers. Outcomes Recruitment and retention rates were measured. A mixed methods process evaluation evaluated feasibility and acceptability of the intervention and study procedures. Using electronic care records, researchers extracted service use data and undertook a dementia care plan audit, preintervention and postintervention, assessing feasibility of measuring the primary implementation outcome: adoption of personalised care planning by participating general practices. Participants completed quality of life, and service use measures at baseline, 4 and 9 months. Results 60 PWD (75% of recruitment target) and 51 carers (77% of recruitment target) were recruited from seven general practices across four PCNs. Retention rate at 9 months was 70.0% of PWD and 76.5% of carers. The recruitment approach showed potential for including under-represented groups within dementia. Despite implementation challenges, the intervention was feasible and acceptable, and showed early signs of sustainability. Study procedures were feasible and accessible, although researcher capacity was crucial. Participants needed time and support to engage with the study. Care plan audit procedures were feasible and acceptable. Conclusions The PriDem model is an acceptable and feasible intervention. A definitive study is warranted to fully inform dementia care policy and personalised dementia care planning guidance. Successful strategies to support inclusion of PWD and their carers in future research were developed. Trial registration number ISRCTN11677384.
Author(s): Griffiths S, Spencer E, Flanagan K, O'Keeffe A, Hunter R, Wiegand M, D'Andrea F, Benjamin L, Poole M, Hagan AJ, Brar M, Wilcock J, Walters KR, Robinson L, Rait G
Publication type: Article
Publication status: Published
Journal: BMJ Open
Year: 2024
Volume: 14
Issue: 7
Online publication date: 13/07/2024
Acceptance date: 24/06/2024
Date deposited: 29/07/2024
ISSN (print): 2044-6055
ISSN (electronic): 2044-6055
Publisher: BMJ Publishing Group
URL: https://doi.org/10.1136/bmjopen-2023-083175
DOI: 10.1136/bmjopen-2023-083175
Data Access Statement: Data are available upon reasonable request. The deidentified data that support the findings of this study were collected through and are held by University College London. Restrictions on the availability of these data apply, which were used under license for the current study, and are not publicly available. Quantitative data is available from the authors upon reasonable request with permission of Professor Greta Rait (g.rait@ucl.ac.uk). Qualitative data, which has been pseudonymised rather than anonymised, will not be available. Requests to use data will be submitted on a standard form and reviewed by a committee prior to data-sharing agreements being developed
PubMed id: 39002959
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