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Lookup NU author(s): Dr Gurdeep SagooORCiD
This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY. Published by BMJ. Objectives Patient experience is directly related to health outcomes, and parental experience can be used as a proxy for this in neonatal care. This project was designed to assess parental experience of neonatal surgical care to inform future service developments and improve the care we provide. Methods This was a qualitative study using rapid qualitative analysis. The study was carried out in a large neonatal surgical intensive care unit in the UK. Parents of infants treated by the neonatal surgical team between March 2020 and February 2021, during the COVID-19 pandemic were included. Purposive sampling was used to ensure that a representative range of parents were interviewed. A semistructured interview was created and tested in a previous phase of work. This questionnaire was used to ask parents open questions about different aspects of their infants' healthcare journey from the antenatal phase through to discharge from the neonatal unit (NUU). Results Rapid qualitative analysis was employed, and parental experiences were grouped into five main categories: before admission to the NNU, initial admission to NNU, information and support, COVID-19 and discharge. Within these five groups, we highlighted positive experiences to be fed back to the healthcare teams to reinforce good practice, areas that warranted improvement and suggestions for service development. Conclusions The wealth of data generated from the interviews has been summarized and shared with healthcare teams who are putting the service improvement suggestions into practice. The tool is available for services that wish to measure parental experience.
Author(s): Littlejohns A, Crouzen E, Mernenko R, Metcalfe F, Moni-Nwinia W, Chauhan H, Johnson B, McConachie D, Lawson E, Tricklebank V, McElwaine JG, Sagoo GS, McKechnie L, Latchford G, Sutcliffe J
Publication type: Article
Publication status: Published
Journal: World Journal of Pediatric Surgery
Year: 2023
Volume: 6
Issue: 3
Online publication date: 10/07/2023
Acceptance date: 31/05/2023
Date deposited: 18/06/2024
ISSN (electronic): 2516-5410
Publisher: BMJ Publishing Group
URL: https://doi.org/10.1136/wjps-2023-000596
DOI: 10.1136/wjps-2023-000596
Data Access Statement: Data are available upon reasonable request.
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