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The experience of children with disabilities and their families during the COVID-19 pandemic; what lessons can we learn?

Lookup NU author(s): Professor Lindsay Pennington, Dr Hannah MerrickORCiD, Professor Jeremy Parr

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This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).

Abstract

COVID-19 has had serious, negative impacts on children’s health and development. But the impacts have not been felt equally; disabled children and their families have been hit particularly hard. In this paper we summarise UK legislation to limit the spread of the virus and describe how services to disabled children changed as a result. We discuss the long-term deleterious impacts of changes in service provision on the health and wellbeing of disabled children and the parent carers supporting them. We close with lessons learned for resetting services to support the ongoing recovery of children and their families and recommendations for delivering services better in future emergencies to ensure that disabled children’s health and wellbeing is maintained.

Publication metadata

Author(s): Pennington L, Merrick H, Allard A, Morris C, Parr JR

Publication type: Article

Publication status: Published

Journal: Paediatrics and Child Health

Year: 2024

Volume: 45

Pages: 651-684

Print publication date: 17/06/2024

Online publication date: 24/04/2024

Acceptance date: 11/04/2024

Date deposited: 13/04/2024

ISSN (print): 1751-7222

ISSN (electronic): 1878-206X

Publisher: Elsevier

URL: https://doi.org/10.1016/j.paed.2024.04.002

DOI: 10.1016/j.paed.2024.04.002

ePrints DOI: 10.57711/xy1e-w553

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