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Lookup NU author(s): Professor Barbara HanrattyORCiD
© 2022 The Author(s). Published by Elsevier Ltd. This is an Open Access article under the CC BY-NC-ND 4.0 license. Reforms to social care in response to the COVID-19 pandemic, in the UK and internationally, place data at the heart of proposed innovations and solutions. The principles are not well established of what constitutes core, or minimum, data to support care home residents. Often, what is included privileges data on resident health over day-to-day care priorities and quality of life. This Personal View argues for evidence-based principles on which to base the development of a UK minimum data set (MDS) for care homes. Co-produced work involving care home staff and older people working with stakeholders is required to define and agree the format, content, structure, and operationalisation of the MDS. Implementation decisions will determine the success of the MDS, affecting aspects including data quality, completeness, and usability. Care home staff who collect the data need to benefit from the MDS and see value in their contribution, and residents must derive benefit from data collection and synthesis.
Author(s): Burton JK, Wolters AT, Towers A-M, Jones L, Meyer J, Gordon AL, Irvine L, Hanratty B, Spilsbury K, Peryer G, Rand S, Killett A, Akdur G, Allan S, Biswas P, Goodman C
Publication type: Review
Publication status: Published
Journal: The Lancet Healthy Longevity
Year: 2022
Volume: 3
Issue: 3
Pages: e186-e193
Online publication date: 07/03/2022
Acceptance date: 02/04/2019
ISSN (electronic): 2666-7568
Publisher: Elsevier Ltd
URL: https://doi.org/10.1016/S2666-7568(22)00010-1
DOI: 10.1016/S2666-7568(22)00010-1
