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Lookup NU author(s): Dr Andrea Mayrhofer
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND).
Copyright © The Author(s) 2020. Published by Cambridge University Press.Recent research on young onset dementia (formal diagnosis at age <65) evidences emerging work around pre-diagnosis, diagnosis and the need to improve post-diagnostic support for this group. An increased awareness of young onset dementia has led to the establishment of peer-support groups, support networks and the involvement of people affected by dementia in research. However, the need to join up services at the systems level persists. Third-sector organisations that offer post-diagnostic support at the community level rely heavily on volunteers. Implications for policy and practice are that community-based commissioning of integrated services between health care, social care and the third sector would go a long way to providing the continuity and stability required in dementia support and care along the illness trajectory. This discussion document was written in collaboration with diagnostic services, the charity sector and conversations with people living with, and affected by, dementia.
Author(s): Mayrhofer AM, Shora S, Tibbs M-A, Russell S, Littlechild B, Goodman C
Publication type: Review
Publication status: Published
Journal: Ageing and Society
Year: 2021
Volume: 41
Issue: 11
Pages: 2437-2445
Print publication date: 01/11/2021
Online publication date: 05/05/2020
Acceptance date: 10/03/2020
ISSN (print): 0144-686X
ISSN (electronic): 1469-1779
Publisher: Cambridge University Press
URL: https://doi.org/10.1017/S0144686X20000422
DOI: 10.1017/S0144686X20000422
