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Lookup NU author(s): Professor Dame Louise Robinson
This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0).
© The Author(s) 2019. Background: A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good or effective care into quality indicators that inform service development and evaluation. Aim: To identify and critically evaluate quality indicators for end-of-life care in dementia. Results: We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines. Conclusions: We systematically derived and assessed a set of quality indicators using a robust framework that provides clear definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex interventions in end-of-life care in dementia.
Author(s): Amador S, Sampson EL, Goodman C, Robinson L
Publication type: Review
Publication status: Published
Journal: Palliative Medicine
Year: 2019
Volume: 33
Issue: 4
Pages: 415-429
Print publication date: 01/04/2019
Online publication date: 11/03/2019
Acceptance date: 02/04/2016
ISSN (print): 0269-2163
ISSN (electronic): 1477-030X
Publisher: SAGE Publications Ltd
URL: https://doi.org/10.1177/0269216319834227
DOI: 10.1177/0269216319834227
