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Improving participation outcomes and interventions in neurodisability: co-designing future research

Lookup NU author(s): Jennifer McAnuff, Professor Niina KolehmainenORCiD

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This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License (CC BY-NC 4.0).

Abstract

There is an urgent, agreed need to improve participation outcomes and interventions for children and young people with neurodisability. We worked together with service users and providers to design research into participation outcomes and interventions in neurodisability. We built on existing evidence about participation outcomes and interventions and the WHO International Classification of Functioning, Disability and Health. We: (1) specified seven participation outcome categories for measurement; (2) prioritized these for improvement: self-care, friends and social, and physical activity ranked the highest; (3) identified 11 potential intervention categories for targeting the top priority, self-care, through eight hypothesized change mechanisms and agreed for the interventions to be delivered as a 'Menu of Interventions' for personalized self-care support; and (4) designed a before-and-after mixed methods feasibility study to evaluate the Menu with children and young people (0-12 years) and their parents and therapists.

Publication metadata

Author(s): McAnuff J, Brooks R, Duff C, Quinn M, Marshall J, Kolehmainen N

Publication type: Article

Publication status: Published

Journal: Child: Care, Health and Development

Year: 2017

Volume: 43

Issue: 2

Pages: 298-306

Print publication date: 01/03/2017

Online publication date: 21/10/2016

Acceptance date: 04/09/2016

Date deposited: 24/10/2016

ISSN (print): 0305-1862

ISSN (electronic): 1365-2214

Publisher: Wiley-Blackwell Publishing Ltd

URL: http://dx.doi.org/10.1111/cch.12414

DOI: 10.1111/cch.12414

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